Support Resources
Equipment
Many families ask about what sort of equipment they might...
Find out More
Sleep issues in Batten Disease
A parent led guide
Find out More
Wish Granting
There are charities and organisations across the UK that specialise...
Find out More
Holidays and Short Breaks
Opportunities for holidays or short breaks can be few and...
Find out More
Activities and Leisure
All children have the right to play and enjoy activities...
Find out More
Home Adaptations- Paul's Story
A Parent Led Guide
Find out More