Tern Therapeutics press release and update on progress in the TTX-381 and TTX-181 clinical trials 27 February, 2025 Tern Therapeutics have published a press release and written a Find out more
Sarah Kenrick takes up position as Head of Support and Advocacy for BDFA 6 February, 2025 We are delighted to announce that Sarah Kenrick has formally Find out more
Channel 4 News highlight current NICE re-evaluation of Brineura 30 January, 2025 Last night, Channel 4 News ran an excellent four-minute feature Find out more
Christmas message and round up from BDFA CEO 23 December, 2024 Dear all, As we approach the end of 2024, I Find out more
Welcome Philip Walker as our new Trusts and Foundations Fundraising officer 20 December, 2024 We are thrilled to announce that Philip Walker has joined Find out more
Big Give Christmas Challenge 2024 total announced! 10 December, 2024 A grand total of £21,660 including Gift Aid has been Find out more
Big Give Christmas Challenge 2024 – Now live! 3 December, 2024 Our Big Give Christmas Challenge campaign page is now open Find out more
BDFA Christmas cards now on sale! 29 October, 2024 The BDFA Christmas card packs are now available for purchase Find out more
BDFA response to extension of Brineura Managed Access Agreement for the treatment of CLN2 9 October, 2024 B DFA response to extension of Brineura Managed Access Agreement Find out more
Cambridge Institute of Music Therapy running research project for children with Batten disease 18 September, 2024 We are thrilled to announce that the Cambridge Institute of Find out more
News on the BDFA Charity Incorporation 3 September, 2024 The Trustees and team are pleased to advise that on Find out more
Tern Therapeutics enters into a global licensing agreement with REGENXBIO Inc. for RGX-381 and RGX-181 31 August, 2024 The BDFA is delighted to share that Tern Therapeutics, a Find out more
