News

U.K. MHRA Awards Tern Therapeutics Innovation Passport for TTX-381 to Accelerate Gene Therapy for the Treatment of the Ocular Manifestations of CLN2 Disease

Evidence of the impact of CLN2 and CLN3 Batten disease on families in the United Kingdom publication

Music as a Lifeline: Exploring the Role of Music Therapy for Children with Batten Disease

Join us for the BDFA AGM- Saturday 21st June 2025, 10am

For children with a rare form of dementia, music could be a powerful therapy tool

BDFA Statement in Response to NICE Publication of Draft Guidance for the treatment of CLN2

Beyond Batten Disease Foundation update on the ongoing Miglustat trial for CLN3

International Batten Disease Awareness day is just around the corner! Monday 9th June 2025

Farewell Message from the Chair of the BDFA

BDFA Peer Befrienders London weekend

Families of children with deadly disease demand access to life-changing treatment

Brain Awareness week! Find out more about the Batten Disease Global Research Initiative