Celebrate 25 Years of BDFA – An Exclusive Evening with Lord Botham 9 October, 2026 Thursday 12th November | 7.30pm–9.00pm | Online Event Join us Find out more
Introducing The first BDFA Scientific Affairs & Research Newsletter! 13 August, 2026 The first edition of the BDFA Scientific Affairs & Research Find out more
BDFA is supporting The Neurological Alliance calling on the government to introduce a Modern Service Framework for neurological conditions 7 August, 2026 Families with a Batten disease diagnosis are often overwhelmed trying Find out more
Get tickets now for our first in person event for bereaved community 23 July, 2026 The BDFA are so pleased to be able to offer Find out more
News update from ForeBatten Foundation- Project Four Leaf Clover for CLN3 30 June, 2026 Dear Families, Please follow the link below for some news Find out more
Event for bereaved community- save the date! 25 June, 2026 BDFA is planning an in person event for our bereaved Find out more
International Batten Disease Awareness Day! 9 June, 2026 The 9th of June is International Batten Disease Awareness day Find out more
Craig’s 4,750 Mile Cycling Challenge for the BDFA 29 May, 2026 This June, dedicated fundraiser Craig Chadburn is preparing to take Find out more
Announcing the 2026 Batten Disease Research Awards! 15 May, 2026 The Batten Disease Global Research Initiative (BDGRI) is proud to Find out more
Treasurer needed to join the BDFA Board of Trustees – Make a Meaningful Impact for Families Affected by Batten Disease 13 May, 2026 Volunteer Trustee Opportunity – Treasurer Needed The Batten Disease Family Find out more
Tern Therapeutics Presents Long Term Data 12 May, 2026 Late last week, Mr Robert Henderson, Consultant Paediatric Ophthalmologist at Find out more
National Lottery Awards for All Northern Ireland awards grant towards BDFA Family support services in Northern Ireland 7 May, 2026 The BDFA is grateful to the National Lottery Awards for Find out more
