Introducing The first BDFA Scientific Affairs & Research Newsletter!

The first edition of the BDFA Scientific Affairs & Research Newsletter is here!

Stay up to date with the latest developments in Batten disease scientific and clinical research, and learn more about the work taking place to improve understanding, care and future treatments.

This is the first of what we hope will be a regular update for the Batten disease community, and we'd love to hear your feedback.

Read the newsletter here: bdfa-uk.org.uk/sites/default/files/2026-08/Scientific Affairs %26 Research Newsletter Aug 2026-1.pdf

If you wish to read the relevant scientific literature for the last 6 months (Jan- June 2026) please click the link 

bdfa-uk.org.uk/sites/default/files/2026-08/Publications Jan-June 2026- Newsletter.pdf

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