BDFA is supporting The Neurological Alliance calling on the government to introduce a Modern Service Framework for neurological conditions

Families with a Batten disease diagnosis are often overwhelmed trying to manage a range of different medical specialities. There is no dedicated long-term improvement plan for neurological health and care services in England.

That is why The Neurological Alliance is calling on the government to introduce a Modern Service Framework for neurological conditions, to improve access to services, reduce emergency admissions, and reduce health complications.

The BDFA is supporting this campaign and you can help by signing the petition here: https://ow.ly/OHof50Zu5Q8