Today is to raise awareness and celebrate the people in our community but we also remember to families who have lost loved ones.

On Batten disease awareness day we remember all of the children and young people who we have lost due to this devastating disease.

This post is about the lovely little Bertie, who had CLN1. Thank you to Mimi and Andrew for sharing these lovely memories about him today.

#battenday2024 #battendisease #battendiseaseawareness