Recently the Harrison family appeared on ITV 1's This Morning as part of the Text Santa appeal. One of the charities supported is Together for Short Lives. As well as raising much needed awareness for them, it was also great to…
Read the Annual Report 2014 here The Batten Disease Family Association is the only UK Charity committed to supporting families, raising awareness and funding research into the devastating set of neurodegenerative diseases commonly known as Batten disease. The BDFA was…
We are delighted to announce that thanks to every one of you who has run through mud, swam Scottish Lochs, cycled the length of the country, drunk coffee, walked, ate cake, had hair cuts and everything else in between to…
After the success that was our Family Weekend, we have the video highlights ready for you to see! Please watch and share! https://vimeo.com/112004121
Thursday, 20th November 2014 – 9.30am – 4.30pm EventCity, Barton Dock Road, Manchester, M17 8AS, (Near the Trafford Centre) More Info here Free entry, free parking, fully accessible! The show guide for this event is now attached. · Do you know…
After the amazing Family Conference weekend, we would love it if you could send us your feedback. Below is a very brief feedback form to fill in. You can download it, complete it and post it back to us. Lucy…
The BDFA Family Conference is over for another year. Lots of families, children and professionals attended. Once we have had chance to re group, we shall have a full review of the weekend. You can see more pictures on our Facebook…
Day 1 of our Family Conference has finished. Seeing the families getting the chance to talk to each other and also to the professionals is exactly the point of the weekend. We have had research updates, family groups, activities for…
Our latest Newsletter is available to read and download. Click here to read it.
As many of you know our annual family conference will be in Coventry at the RNIB centre on the 8-9th November. We are really looking forward to welcoming so many of you but if you are unable to attend we…