Did you know, for the price of a cup of coffee you could help the BDFA in a big way. Making a regular donation of just a few pounds a month means we can plan the funding of essentials such as the…
This leaflet was designed to answer some of your questions about what the equipment needs will be for a child or young person living with a diagnosis of an NCL disease. The BDFA Support and Advocacy Partner is available to…
This leaflet was designed to answer some of your questions about financial support available when you are caring for a child or young person living with a diagnosis of an NCL disease. The BDFA Support and Advocacy Partner is available…
You are all invited to our New Office Launch on February 27th 2015 - 12-2pm A chance to meet the team and find out more about what we do. Refreshments provided! The Old Library, 4 Boundary Road, Farnborough, Hants, GU14 6SF Link…
We have signed up as a charity that can now be supported by Recycle4charity - head over to the website and see if you can help. You can recycle ink cartridges and mobile phones, both of which we all go through…
Genetic alliance UK would like to invite you to join us for our week of events exploring how genome sequencing could impact your future. For details of the events and how to book tickets, please visit their website.
Good news for the next step in European Research funding for Batten disease. The proposal submitted by Dr Sara Mole, UCL London, has successfully passed the first round in the European Commission funded project Horizon 2020 Societal Challenge “Health, Demographic…
Please note we now have a new BDFA Office. Our address is The Old Library 4 Boundary Road Farnborough Hants GU14 6SF Our phone numbers and email addresses remain the same. If you are in the area and would like…
The SENDirect website launched this week. Just type in your postcode and it will give you a list of services available in your area. You can search for free services and services for a specific age. Visit the website here
NEW YEAR NEW START! Feeling a little jaded after the excess of Christmas? Looking for some inspiration to make a difference to Batten Disease? Wanting to set yourself a New Year challenge? Why not sign up for the British 10K London Race and…