Anna’s mun Laura shares the highs and lows of her diagnosis

Anna was diagnosed with CLN3 Batten disease two years ago. She struggles with depression, anxiety, hallucinations, sleep and terrible meltdowns.

It is the most devastating and heartbreaking disease.

Anna has the most beautiful singing voice, and it’s such a joy to listen to her sing when she is happy and having a good day, we really do cherish those moments.